Sorry there has been no post lately, I am without a computer and am not to sure when I am getting mine back (It’s in for repairs). I just wanted to let you know that there is news, I cannot get into details, as my time is limited, but I can quickly let you know what is going on.
The Neurologist called and they had their meeting today, where X was presented. In a nutshell (Again I do not have a lot of time) they want to do more test on him, since they have the time because the surgeon is gone next week. This test will allow them to make sure of where the seizures are coming from. I cannot remember the type of MRI it is, but if it works, they will be able to make sure the seizures are not coming from his primary motor area.
If they are coming from his primary motor area and not the supplementary motor area surgery would be a no go. Instead we are left with the Vagus Nerve Stimulator. Here is a link so you can understand what it does and is http://en.wikipedia.org/wiki/Vagus_nerve_stimulation . My personal choice would be surgery because then we should be done with this whole thing (But we all know how that can go), I just want this to be over for him.
I am also stuck with trying to figure out if I am going to continue to really express my feelings on this site; it’s a long story I am not going to get into but I may be only posting updates on this. My intention in writing this blog was to keep family and close friends up to date on our situation, afterall I am expressing my true feelings and revealing a lot of who I am in this, I am not too comfortable sharing those raw emotions with the world so I am trying to figure out what I will be doing.
Sarah is alone with the kids, and I am back at work, she is having a hard time since her day is just as packed as ever, and I am forced to go back to work. I know wome may wonder why I am forced, because I do not have unlimited vacation time. Work has been great about this whole thing, incredible really, but I am forced to make the hard choice of going back to work in effort to save some vacation days in case something else goes wrong in the future, because you never know.
So the direction of prayer for us is that X is able to do this test with Sarah, and Sarah does not go insane because of all the kids. I am doing well since I have my neighborhood friends feeding me, I actually miss the organized chaos.
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